Wednesday, March 30, 2011

Hospital Admission



Cameron went for his check-up before our trip to see if we should switch antibiotics and was told he needed to be admitted and put on IV antibiotics. So, we've been here since yesterday. I got no sleep last night, someone came in every 30 minutes at least. Cameron didn't get great sleep. Then we spent a frustrating morning waiting on meds and breakfast. He was so hungry he scooped the butter right out of the container with his finger and ate it once he was done with his bacon and pancakes. The nurse laughed. I didn't even care, I was glad he was getting fat. He is doing CPT every 4 hours here and has been using a vest for the first time. He laughs when it's on because his voice sounds funny from all the shaking. He sometimes complains it's too tight, I think he's just not used to the feeling. It's pretty neat though, I think it knocks a lot around in there. His Uncle Seth and girlfriend Amanda came to visit, which was a nice break. They brought him McDonald's (thank goodness because he didn't like one single thing on his lunch tray from the hospital). He only had about a half hour nap until he was woke up for something else. However, while he was sleeping, he had a surprise delivery. Grandma and Grandpa Hoeptner sent a bouquet of balloons. He LOVES them. He hides in them and likes to carry them around the room. People always say you can't have enough balloons in a hospital room and I guess it's true, he thinks they are pretty cool. He keeps asking people which is their favorite. Then, Aunt Erin sent a gift with 3 zoo lovies in it. Cameron picked his favorite and then sorted all of his lovies by size and where they needed to go around him for him to sleep. Silly boy! He even said he thinks he's going to give one to Trevor. How nice of him. One of the teachers on my team came out and brought Cameron some treats I thought he'd like and then we went to dinner so I could get a good meal and get out of the room for a little bit. Zach came after work to be with Cameron. Nana was nice and kept Trevor late tonight. Zach got him after I got back from dinner. I miss Trevor! I wish he was closer so that he could visit easily. Maybe tomorrow or Friday. I'm having Trevor withdrawal. It's hard with him here though because he likes to push buttons, open and close things, etc. He thinks it's a fun, new place. He was very good the other night though and tucked in with Cameron to watch a show. If he could do that more of the time here he could hang out a little longer. We'll see. Tomorrow morning some time Cameron will do his PFTs. The results from that will determine whether we need to cancel our trip for sure and how long he will need to be here. So, we're hoping for a miracle.

Right now he's finally asleep. He's calling things out in his sleep, tossing and turning, calling my name and seeming frustrated, but asleep so not making much sense! His face is bright red and it's cold in here. Ahhhhhhh!! I hate hospitals!!!

Saturday, March 26, 2011

Spring Sickness

Well, spring has sprung and everyone in our house is sick! Cameron has been sick since last Sunday. His cough sounds worse than I've ever heard. He sounds like a dog barking. He's finally able to sleep, even with the coughing at night, but he hasn't really been improving yet. We went to the children's hospital and had a bunch of tests run as well as a chest x-ray. All looked okay, with the exception that he has an infection. We are waiting on his throat culture. Once we get that, we're hoping we can provide him with a specific antibiotic to help kick this more quickly. Trevor started coughing just at night a couple nights ago and is now sounding pretty bad. So, we will be going to the Sunday sick care at our pediatrician. He's pretty cranky as well. I know a lot of this is sparked by allergies! Zach got up today and said that his throat has a lot of drainage now as well and it's bothering his ears. We are going on our trip in just 6 days, I need this household well!!!! I'm mostly concerned for Cameron because this type of thing is hard for his little body to kick and there's always the risk that he's going to have breathing troubles. I really don't want that happening when we are away from our doctors!
I'm trying to get some new jewelry done so I can try to raise some money for our CF team. We are only half way to our goal so far and we have about a month to go!

Saturday, March 12, 2011




Last week we went roller-skating. My school does a PTA fundraiser once a month. Cameron and I have been going. He is getting really good. He can now slide when he skates, rather than just stepping all the time. Zach was able to come for the first time, but he couldn't skate because he was still in his foot boot. So, I took Trevor out there. He wanted to do it so bad, but he was scared to death and wanted me to hold him out there, so he ended up just watching.


Today we went to a birthday party at a bouncy place. The kids jumped and ran around non-stop for a hour and a half. Zach and I were also able to participate as they needed our help at times. Plus, the boys got a kick out of us doing it too. I personally thought the tall slide was fun! They took good naps, then we were able to play outside for a while. It's a beautiful day. Zach and I worked on the yard a bit and the kids played in the mud. They are in the bath as we speak!

Wednesday, March 9, 2011




Proud of his metal.


Cameron writing his name on the sidewalk.

On the way to the Celebrity Dinner Party.

As usual, life has been busy! It's been a while since I've updated. February was filled. Cameron had basketball every Saturday. He loved it. He would smile with his tongue out running back and forth on the court, making sure to check that we were watching. He was one of the top shooters and got much better at dribbling.

Zach and I went to the CF Celebrity Dinner Party. My support group made the center pieces. They were themed wind chimes. We put a lot of effort into making them special in hopes of raising a lot of money. We raised over $5000 for the foundation! Well worth the effort.
Just this last weekend, we were given free VIP tickets to the Broadway show, "Madagascar." We were only given 2 tickets for 2 different show times. So, Zach took Trevor while I went to basketball with Cameron. Then, Cameron and I went later that night. The kids loved it. I think Trevor was even more entertained than Cameron. It was a neat experience for them and they did very good during the show. There were tons of other kids, all asking questions during the show (not as quietly as they should), so our kids were not out of place. :)
Trevor and I got sick Sunday and have not been great since, but are doing better. Luckily Cameron and Zach have been in the clear so far. We are hoping and praying Cameron will be completely healthy for our trip to California in a few weeks. I am scared to let him go on a plane if he is having any chest issues.
A big change for me is that I just started my Scentsy business. I had my kick-off party and am now looking for people that want to host a party. If you have never used one of these wickless candles, it is the time to try! You can order at any time from my website: www.courtneycurecf.scentsy.com. I am using half of the money for our own medical related bills and the other portion towards our Great Strides team. First I have to make profit!! So, I've been busy trying to get that going and then trying to get fundraising going and people to join our team for Great Strides. It's been a slow start this year, it's making me a bit nervous. Zach is putting on a duathalon this summer, but that will not be until August and will go towards next years fundraising. So, if you're local, be sure to join our team. If you're not and want to walk, let me know and I can tell you what to do. Hope everyone is doing well!