Cameron

Cameron has been having belly issues for the last couple weeks. We tried to resolve it at home, however, upon more x-rays today, we found out it is only worse. He was admitted this morning, but did not start the meds he needed until about 5pm. He has DIOS (Distal Intestinal Obstruction Syndrome). This is pretty common for kids with CF. However, this is our first experience, so with it being all new, it's been a bit scary. Cameron has been a real trooper. He had no tears with the blood work, IV, x-rays, but the tube that has to remain in his nose is not his favorite thing. It's been so hard because he acts so healthy and happy. He hasn't complained of any belly pain or anything and he's been going to the bathroom. However, not enough because his whole colon is clogged up now. This would ultimately cause a bowel obstruction and it had to be cleared at this point. Now that he's admitted, he won't even talk. He says he doesn't want to talk because of the tube in his nose (this is how he gets his medicine to clear out his colon). He just whispers or points to what he needs. My poor baby! I can't do anything except try to keep him comfortable. He looks miserable. I hate that he has to go through this. This should not be a regular thing for a 3 year old. I miss Trevor too. I don't get to see him since I'm at the hospital. But, if I went to see him, I'd be worried sick about Cameron. It's so hard!

On a more positive note. Saturday went fantastic at the Great Strides walk. I set up my jewelry booth and made about $400. With that, our team will reach over $10,000. I'll get my final number once we turn it all in. I still have some checks at home still. Cameron ran around the Slugger stadium over and over with his grandma Herzog. The walk started at the stadium, so we had free run. How often can you run around an empty stadium? Many of our friends came out to walk with us and some of my work friends. It is always very touching to have everyone there to support us and this cause. In my life, I have participated in so many walks. I did it because I felt like I was supporting something and I wanted the exercise. It's just so much different when it touches you in such a personal way. Each year right when the walk is about to start, my eyes start watering and my heart starts pounding. I feel a lump in my throat. It's like there is this big realization that we are there at that moment for my son and others that have this disease with no cure. We are trying to fight for a cure for them. It's the realization that this is a lifelong battle that we are in, not just that days walk. It's so hard to express the feeling I have each year on this walk. I know those parents with kids with CF know what I'm talking about. I'm just grateful we have been able to continue to raise money and hopefully make more people aware of this disease. Thank you to all the friends and family who joined us and supported us for the walk this year. Your donations and presence are appreciated more than I can ever express in words. Now, as I sit in this hospital room and watch my baby try to fall asleep, I just wish I could get him an easy answer and give him some medicine or something to make it so that he will never have to be here again. I do not want him to know a hospital room as his second home!
He's so sweet. He keeps pointing to the tube in his nose and saying he can't talk because of it, or he can't sleep because of it, or he can't go to the bathroom because of it. I feel so bad for him! Time to go lay by my baby. Let's hope that he can go home soon!